Tuesday, June 30, 2009

Thembi's death


Maybe you knew about this already, but I just found out this morning. Thembi Ngubane, the South African Radio Diarist who spoke so candidly and beautifully about her life with HIV/AIDS, died of drug resistant TB earlier this month. She died within a few days of diagnosis. Thembi was 24 years old, and such a powerful advocate.
http://www.npr.org/templates/story/story.php?storyId=105017959

I learned about her for the first time last fall, and was hooked. I emailed the link to friends, shared it on Facebook, and listened many times during this past year when I felt like I needed to hear her again.
http://www.radiodiaries.org/aidsdiary/index.html

TB is the number one killer of people with HIV. Here you can watch James Nachtwey's slideshow and take action in the fight against XDRTB:
http://xdrtb.org/

Thursday, June 25, 2009

Here in North Carolina, there's a woman named Vimala Rajendran who opens her home to the community each Wednesday, cooking traditional Indian food for all who stop by. There's a donation jar, and the money often goes toward a cause, organization, or family. If you go, plan to stay, but bring tupperware because you'll want leftovers.

http://www.indyweek.com/gyrobase/Content?oid=oid%3A354663

I finally made it for the first time last night, and listen to this. When a friend introduced us and Vimala heard that I focused on child-headed households and HIV/AIDS in Malawi, she immediately suggested we organize an event to raise money for the people I met there. "We'll make African food - oh samosas! you ate samosas on every street corner, right? - and you can do a slideshow." Nsima with "relish" should definitely be on the menu. According to Malawians, anything else is just a snack.

Friday, June 19, 2009

Some of my favorite memories from this trip are those times when I handed my equipment over. A few people were hesitant to use my camera, but most loved it, as did their friends and neighbors. One teen in Mitundu immediately took off with it, a trail of kids behind him, and took great photos of village life that I would've been too shy to attempt. It was sweet how they wanted to show each picture once they learned how. Other times I'd stick the headphones on one kid and a mic or two in the hands of another during a recording. One time I spoke with two sisters in their 20s, orphaned and both, along with several other family members, infected with HIV. When we were done, I asked if they wanted listen to their interviews, something I rarely did, and had difficulty pressing stop about 25 minutes later.

Tisa

The interview I edited today was with a 14 year old who lives in the Mitundu area with her grandmother and three younger siblings. Her mother passed away suddenly (collapsed while washing clothes, died that same night) when she was ten and her father died of pneumonia (she remembers him crying out in pain one night, and that he died after two weeks in far away hospital). Tisa goes to school three days a week and does piecework (temporary fieldwork) the other two days so that her family will have enough to eat. She was 2nd in her class of 32 students last term. When her mother was alive, she would sometimes buy the children clothes. Her father always encouraged education. She said that she will be able to face life's challenges if she can finish school.

I asked about HIV education in her school. Weekly focus groups, coed, where students discuss an assigned topic and ask the teacher for help as needed. She said that both girls and boys feel comfortable asking anything in these sessions, and that she’s never asked a question because she knows everything about HIV. If she does have a question, is there someone with whom she can speak in private? Her voice changes. “No, there is nobody.” Listening back today, I wonder what message I sent by following up a bit but not providing any good suggestions.

She mentioned that she didn’t have a uniform or school shoes and that, for the third year in a row, she and her siblings don’t have a blanket. Nights can be near freezing during Malawi’s winter months. Tisa and her siblings sleep in a sack and their chitenge (cloth) and their grandmother in her jersey. She estimated that shoes would cost 800 kwacha, slightly over $5, and I knew that a blanket was 1500 kwacha, roughly $10. Her calm and respectful request for assistance was met by awkwardness on my part as I wondered, Is it right to promise money quickly, as if even this amount is no big deal? I can buy the blanket; should I pay for the shoes as well? If I give money to her, is it fair to others who have been interviewed? Is the fact that I’m even hesitating related to my social class? ... Arichie is delivering the blanket and shoes to her with the photos from her disposable camera. It’s not enough, I know.

Tisa took great photos, both with my camera and the disposable. Not only does she have a good eye, but she clearly put a lot of care and thought into each picture. Oh and she bravely resisted her friends’ pressure and only took a few pictures of them so she could focus on documenting her daily life. This girl is so inspiring.
So it didn’t occur to me that I could keep blogging even after returning to the US, but several people have made the suggestion. Last night I spent a few hours teaching myself how to use iMovie, and today it was GarageBand. Both programs are new to me and seemed much more complicated before I went to Malawi; this time around they just make so much sense.

Editing all this material down is no joke. In one month, we interviewed 19 individuals, 9 families, and four groups/clubs, and interviews often consisted of initials and follow-ups and lasted at least hour long, usually in two languages. We also recorded sounds and video at several schools. That’s audio. As for photography, Arichie, several participants, and I took pictures with my camera and I think about 14 people were given disposables. So you can imagine.

Monday, June 15, 2009

BACK IN NC

Yes, Phil you're right about it being time for an update. This past week I was so busy with last interviews that I didn't get a chance to work on the blog. Sorry!

I just got home about 2 hours ago (after 33 hours of traveling), though, so email me and we'll find a time to meet up!

Monday, June 1, 2009

About the drawings that you see at the top of the blog. These were done by some kids in the Mitundu area. We're going to go back there so they can describe their drawings. One that isn't in this picture was described by the artist, a 7 year old girl, as "people going to the grave."



Nachiletso, Tiankhulengi and Mwationa's house


Mara with 16 year old in Mitundu area


The grandmother we met through Mchenga
What’s on my mind:

Right now, I’m supposed to be interviewing a coffin maker, Zughar, but when Arichie and I arrived at his shop, there was a funeral going on across the street. As we pulled up, we saw branches laid out on the side of the road, people sitting in the grass singing. Zughar came over to greet us and to reschedule the interview. He explained that a child of 2 or 3 had died. A pot of boiling water had been sitting on a charcoal burner, and when she got close to warm herself, it fell on her.

Some other things:

Last night, we passed through about 5 areas of the city that were without power. Candles and bonfires everywhere. It is common here for one area or another to be without power for an hour or two – in fact, so common that it’s called “load sharing” because there isn’t enough electricity for the city and areas take turns at going without.

When Arichie, Zughar and I were having a drink together at a bar the other night I noticed that people kept coming up to him, giving him money, or pulling him aside to speak with him in private. I learned that he makes coffins after I commented to Arichie that Zughar was quite the businessman, it being evening and all. On the way to his house, you pass a street of coffin shops. I tried to count them today, and think there’s at least 15 – they are lined up, one after another, on either side of the road. We’re going to interview Zughar tomorrow morning.

Yesterday we went back to the community based organization Mchenga. While there, we interviewed a grandmother who, with the help of one of the volunteers, cares for her grandchildren. She has trouble moving around and sleeping due to pain in her joints. After I took some pictures, she showed us the white hair under her headscarf. She was laughing, so I thought she was joking about old age, but Arichie translated what she said. Our generation won’t have white hair like hers because all the young people are dying. She said this with a smile, a laugh, and in the presence of about 10 kids, some of them orphans.

We also had a good second meeting with Fane (I wrote it Fani before, but that was wrong), the young woman who had one of the disposable cameras. Her day: she gets up at 5am, sweeps the area round her house, and either eats porridge or goes without. Durng the day, sells mandasi (donuts) or buys maize from local farmers and resells it at the market. For lunch she has nsima with a sauce made from what vegetables she can buy, and dinner is the same. When I got home that night, I was famished and couldn’t stop thinking about her as I sat in a comfortable dining room eating fish, vegetables and rice.

I should say that what I’m seeing and experiencing here is a true mixture of tragedy and joy, and so I can’t offer any kind of transition to the following.
On Friday night, a group of us (Arichie and his friends) went to a reggae concert by the Black Missionaries, a famous Malawian band whose tape we listened to nonstop the first week I was here, until we decided that we needed a change (American hip hop).
Then on Saturday Arichie’s cousin Takundwa invited me to a wedding. The church ceremony was that morning, so we went to the reception. It was unlike anything I’ve ever seen. Imagine a huge hall with people sitting, standing, nursing babies, passing Fanta drinks and cokes around. Music is blaring from a sound system of questionable quality, and various groups of people – the bridal party, friends, coworkers – take turns dancing and throwing money at the newlyweds. Meanwhile, an MC is urging people to come up, give money, 500 kwacha, 1000 kwacha, come, everyone, come.

The next day, I went to a Pentecostal church in the morning (singing, dancing, speaking in tongues, falling to the floor) and then onto a “kitchen top up” in the afternoon. This is where a group of women holds a party once a month to raise money for each person’s kitchen. This is a women-only event, and the only men allowed where three young djs. In fact, when a man tried to come in – insisting that he worked for the house and just wanted water – the women laughed at him, yelled, and shooed him away. We sat in rows of chairs, eating from little bags of fried bread and chicken, drinking – yes – Fanta and coke, and facing the “stage” where the woman of the month sat, and took turns dancing up to her and dancing around her throwing money into a bucket or on the ground near her. I went up twice only, once to introduce myself, the second time with Takundwa and her friend. Completely embarrassed and awkward each time since I didn’t know how to dance like they did, but in the end happy that I experienced it all.

This morning we met the community outreach workers at UNC’s project at Bwaila Hospital. From what I understand, this project focuses on reducing rates of mother to child transmission and encouraging men to participate with their wives in care. They seem to have had a lot of success in both of these areas, and today we went out with one of the workers, Alice, as she visited a woman who’s baby had been hospitalized last week due to severe anemia. Once again, I was amazed at how welcoming and kind the workers were. They gave us tea, chatted with us, and made us feel so welcome. Later this week we’ll go out with another UNC community worker, this time from Central Hospital.



Arichie teaching Fane how to use the camera